Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Thursday, October 1, 2015

Primary Hyperoxaluria Type 1 Video

School started.  We had two birthdays.  One baptism.  A trip to Mayo Clinic.  Soccer three times a week.  And happy, busy hearts!

Here's a link to a video I created to promote awareness for the Oxalosis and Hyperoxaluria Foundation.  Enjoy watching, sharing, and becoming aware!

https://www.facebook.com/TheOHF?hc_location=ufi
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1 comment:

JayleenK said...

What a great video. We've been following your journey through your blog since we moved from Denver. You're family is beautiful and the spirit shines through their eyes. You are such an amazing example of faith, courage, hope and love. We miss you guys and you are always in our prayers.
Love,
Teddy & Jayleen Hildebrandt

October 12, 2015 at 9:23 AM

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