Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, August 8, 2009

A day on dialysis

Here's a little taste of what it's like for Claire to be on dialysis 6 days a week, 3 hours a day. The first video shows the technical side of dialysis and how it all works. The second video shows what Mom does to keep an almost-two-year old busy, with limited space and moving ability, for 3 hours! Enjoy.


Posted by at

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)