Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Monday, August 17, 2009

New Blog Button!

(Enlarged to show detail.)

We are so excited to to share our new blog button! We would like to get this on as many blogs as possible. If you have a blog PLEASE add our button! Be sure to share this with friends & family too! The html code is on the sidebar.

If you have any questions, please email us at friendsofbensonandclaire@gmail.com. Thank You!

A special thanks to Le Papier Studio for donating their services in the creation and design of the button. http://www.lepapierstudioblog.com/ They did a wonderful job and we are so thankful for their service.

6 comments:

Cooper's Dog said...

I can't believe what I just read. I will pray for all of you. How does someone get tested to see if they are a match for Claire?

Natalie said...

Claire will need a deceased donor as she needs both a liver and kidney. Her body will have a better chance of accepting the organs if they are from the same donor. At this point we are not looking for a donor for her.

Amy said...

I found your website through facebook. I watched the video of your little girl playing in the hospital. I couldn't help but think, "what if that were my baby?". I donated, not much but what we could afford right now. I also posted your button on my blogs and asked all 500 of my facebook friends to please donate - even just $1. Think about if everyone would just donate $1? I hope it helps. God bless your family. He'll take care of you.

Brillig said...

Natalie, it's Anne from the ward (even though it says I'm Brillig... that's what the blog world calls me). I've passed your link around to my bloggy friends and I've posted about this site on my blog. I've had an influential friend submit my post to Stumble-Upon and the traffic is already pouring in. Hopefully it will make a difference. Good luck with everything. You're always in my thoughts and prayers.

courtney said...

my friend sent me your blog and i wanted to send my thoughts & prayers to you. i love the video of claire, such a happy baby. i pray the lord is with your entire family and that he will make your burdens light. i can look at your family and not see a beautiful light. love, courtney

dee said...

Vana turned me on to your cause and I just wanted to let you know I am adding your button to my blog and keeping Benson and Claire in my prayers.