Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Monday, August 23, 2010

Update

Today we had a long hospital day again. Claire got an antibody boost to help fight off the BK virus. It took 5 1/2 hours!! That's a long time to keep a little one entertained in a hospital bed....make that two little ones. Tomorrow Benson will go play with a friend while Claire and I do it all again. Thankfully, this is only a 2-dose medicine....so we'll hopefully be done with the long days after tomorrow....for another week and a half.
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