biopsy

SO.  Gee.  This week is going by quick!  And last night I was simply exhausted.  I went to bed at 7.  No joke.  Woke up at 9.  Brushed.  Prayed.  and went back to sleep till 7 the next morning.  Ahh.  That felt good.  Ready to start again.  

Okay.  So Claire's biopsy did show mild rejection of her kidney.  There was also a bacteria found in the kidney, but that's kind of weird because we should see the bacteria in her urine and all the urine cultures we've done have been negative.  So hum.  We're still scratching our head on that one.  But to treat the rejection, they are giving her 5 days worth of IV steroids.  We started the first infusion on Tuesday.  Claire HATED getting the IV in her arm and now that it's there…it's staying there till her 5 days worth of infusions are over.  We will at least hope it will last that long.  So far so good.  She pretty much doesn't use her right arm, where the IV is, and is gaining some ambidextrous skills pretty quickly with that left hand of hers.  But she's totally happy to make that sacrifice rather than get an IV put in 5 different times in 5 different places.  So we'll just hope it lasts for 2 more days.

But otherwise she's doing fine.  The steroids make her a bit kookie.  She's a bit more work to handle: super needy, super whiney, irritated easily, not so cooperative/understanding, quite demanding...it's almost like she lost 4 years maturity-wise...like she's 2 again.  Not the same Claire.  Poor sweet thing.  We ask her what's wrong…what do you need...and she simply says "I don't know."  And I'm sure she doesn't.  She just doesn't feel herself and that's okay for a few days.  She's still an amazing trooper for all her little body is going through.  

The kids love going to the hospital.  Free (unlimited) refreshments and crackers.  All the arts and crafts you could want.  Toys from the "play place."  And a couple hours of screen time!!  I don't take them all with me all the time.  When Jared's available I leave one or two home.   But they beg to come with Claire.  And it's always an adventure!  

I believe the plan is to do a repeat biopsy in another week or two to see if things have improved with the kidney.  We'll hope.  We'll do all we can.  We'll pray.  And we'll enjoy another day!