Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.
Saturday, March 1, 2014
tooth
No word on Claire's biopsy yet. We are sure to find out early next week. But look who lost their first tooth yesterday!
Cute picture! When those big teeth start coming in, she will look so old. I can't believe how it changes them. For sure let us know what you find out on the biopsy!
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Cute picture! When those big teeth start coming in, she will look so old. I can't believe how it changes them. For sure let us know what you find out on the biopsy!
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