Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, January 9, 2010

Jan 9 8:30 pm

We loved visiting Gifty on our day off today! She looks marvelous! We were so excited to see her going for a walk in her stroller. Gifty is doing well. Still a few bumps to get over before she can be released from the hospital, but she's on the right path. It made Claire and Gifty very happy to be together again.


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3 comments:

Unknown said...

What an inspiring sight- two beautiful, healthy girls. Keep up the fight Gifty!

January 9, 2010 at 9:16 PM
Amy said...

How precious are they! Man, I just realized how weak I am compared to these two strong spirits. I am so inspired by them. Glad to hear things are going well.

January 10, 2010 at 4:59 AM
R said...

Hey there
I heard about you through rochestermama and have been checking in now and then. I just found out about this website http://www.igive.com that lets you buy things from your favorite places and they donate a percent of it to whatever cause you'd like. Also, everytime you use them as a search engine they donate like 2 cents or something.
I didn't see Benson and Claire on there, but I thought it was a good idea to help raise some more money for them or Gifty or whomever?! Then you could add a link to your blog.
Anyhow, just an idea . . .
Glad to see Claire's doing so well!

January 11, 2010 at 11:42 AM

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