Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Thursday, December 16, 2010

one month

Happy (day late) one-month birthday Mabel!!

So how did we celebrate??

Well, Mabel and I stayed in our pj's all day. I couldn't move without throwing up. The stomach bug that Claire had on Sunday hit Benson on Tuesday and me on Wednesday. Jared was gearing up for it to hit him today but has somehow escaped the wrath!! He and Mabel both! I'm so glad Mabel has stayed well. And I'm also glad it's only a 24 hr. thing per person. We are all feeling much better today and I hope that's the last of it.


3 comments:

Terry and Diana said...

What a beautiful, healthy looking baby. We do hope and pray that she is healthy.

Looking forward to spending time with your family. Hopefully you are all better and healthy by then. And hopefully we stay healthy in the meantime also.

~adelle said...

She is just beautiful. NO MORE GETTING SICK, ya hear me? :) Any word back on the tests they did on Mabel? I am just praying for everything to be well.

Tasha said...

We had the throw ups x 8. It wasn't fun!