Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Wednesday, February 27, 2013

today

Today...

Mabel took off her pants and pulled up her shirt to try to find her g-tube connected to her tummy.  She saw Claire's extension tube lying on the kitchen counter and wanted to try it out herself.  How disappointed she was to find out that Claire was the only one with that magic button!

Claire was thrilled to tell me all about what she learned last night by being at the baby shower held at our house for a good friend.  She said she was watching very closely and trying to remember everything little that was said or done so she could know just how to throw a baby shower when she's a mom!

Benson went to his first officially chess club meeting after school.  Being part of a club is cool enough.  But being part of the community-ed chess club for the next month is even cooler!

I made home-made bread, home-made play dough, home-made dinner with home-made biscuits and am now just waiting for the the home-maid to come clean up my home-made mess!!

and Jared...well no one really knows what Jared does down there in the drafty office (yes, we still need to get the sledding-accident-broken-office-window fixed).  He comes up occasionally for snacks and lunch but the rest of it is kind of a mystery  :)  just kiddin' honey.  I know you're working HARD!!  most of the time :)

1 comment:

grandpa Terry and Diana said...

Good Reports from Minnisota.

In Utah, I just do genealogy, play pickelball, work a little, and walk the dog every day.

Diana on the other hand she works every daay. That is what she tells me anyway and I believe her most of the time.