On Saturday the kids, my sister and I attended our first Primary Hyperoxaluria walk. Earlier in the day I went to meetings at Mayo with other families with PH and we learned, chatted, shared our stories, and received great information from leading experts in this disease. It was a great day followed by a fun walk around Silver Lake Park. We didn't quite make it for the whole walk...by the time all 3 kids were in the stroller begging for a ride, I decided to turn around and call it good! It was really neat to connect with other families with this rare disease (1-3 people per million). We learned from each other, shared with each other, and could empathize with each other. Good memory...most likely followed by more to come in the future!
1 comment:
It's good to know there are others experiencing the same thing and that you can supprt one another.
Cute shirts!
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