Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Friday, March 26, 2010

Bowling fun and Easter tree project

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3 comments:

mortyoeste said...

The first picture is so precious! You can tell how much Claire adores Benson. Such sweet kids.

March 27, 2010 at 7:46 AM
The Fosters said...

Pictures are worth 1000 words. You have not written one word yet what I see in these pictures are two “normal”, “healthy”, fun loving children that love each other very much. Never in a million years would I have guess what your lives were like just a few short months ago. I know it’s not over yet but to be able to enjoy moments like this are priceless.

March 28, 2010 at 7:35 AM
** Adrian ** said...

SO FUN! It looks like they loved bowling & I love your darling easter project, too!

PS... Benson looks SO GROWN UP with his new haircut!! ;D

March 28, 2010 at 10:21 AM

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