March 8 9:00 pm

Things are looking better today. Claire's liver numbers went down! Still not normal, but down is good! She feels fabulous and is just as active as a two year old should be. She's still enjoying the exploration of food. Today she ate jello for the first time and did great with it! It's such a great thing because you don't have to chew if you don't want to (or don't know how to in her case) but it's a different texture for her to explore and the taste was yummy!!

Yesterday she did the craziest thing: she drank 80 mls of her formula that we normally put through her G-tube ONE ML at a time through a syringe!!! That is amazing to us!! I was giving Benson some Tylenol for his fever in a syringe and he squirted it in his mouth to get it down. She saw that and wanted some medicine to do the same with. I gave her water and she did just as Benson had done. She asked for more and so I asked her if she'd like to try her milk I had out ready to put down her tube. She said yes, not knowing any different, and she liked it!!! So 80 times I filled up that 1 ml syringe and she drank it one squirt at a time! To top it off, she did the exact same thing the next hour when it was time to feed her again. Wow. Amazing! I certainly don't expect her to do it all the time nor would I have time to sit there every hour and give her 1 ml of milk at a time....thankfully it was Sunday and we had all day to fill up syringes with milk! But it's a great start!! At least now she knows the taste, likes the taste, and realizes milk can go through the mouth and not just the tube!! We were thrilled.

Benson is doing much better today. He hasn't had a fever at all today but still has a cough and runny nose. He and I sound exactly the same with our coughs. Hopefully we'll get over those soon too! Looking forward to a more relaxing week at home!

story time