Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Wednesday, March 30, 2011

g-tubes

We went to a friend's house for lunch today.

Benson and his friend were talking about x-men, spider man, iron man, and bad guys.

Me and my friend were talking about the color of paint in her kitchen, as she debates whether to repaint it or not.

Claire started up a conversation with her friend with this:

Did you know adults can have g-tubes too?

I'm sure you can imagine the blank stare she got from her friend. After a period of silence, she added,

"or they can have no tube. Some do and some don't."

Oh how we LOVE this princess! She is something else!!!!!
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1 comment:

The Lueders said...

Haha! Too cute! It's kinda sad that her world has...in a way become more grown up due to all the medical stuff she's gone through...hey, maybe one day she'll be a doctor?

March 31, 2011 at 8:55 PM

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