Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.
Monday, June 18, 2012
just singing
This is one of Claire's favorite church songs to sing. Hope you enjoy the dynamics, sneak appearance by Mabel, and the slight Opera-twist to "A Child's Prayer". (sorry it's so small...I'm still trying to figure a few things out here...)
2 comments:
Grandpa Terry and Diana
said...
Great job Claire. Keep on singing that with that happy little heart of yours.
2 comments:
Great job Claire. Keep on singing that with that happy little heart of yours.
That was SO CUTE! Totally just made my afternoon. Can't wait to see you guys in July!
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