Feb 14 10:30 pm

Well, this was supposed to be a Happy Birthday to ME post...and it was kind of that....with an unexpected twist to it.

Claire is in the hospital tonight. Since about 3:00 a.m. this morning, Claire has not been acting normal. She hardly slept a wink after 3:00 and when she got up was even more miserable. She just wasn't acting normal. She wouldn't stand, walk, and was not interested at ALL in playing with anyone. Sure she was tired, but there still seemed to be something else wrong. We put her down for a morning nap and decided that if she didn't go to sleep, we'd take her to the Emergency Dept. She fell asleep just fine for a nap and actually slept for a little over an hour. But when she woke up again, she still wouldn't walk or stand and seemed to be in some abdominal pain. So Jared and I decided she needed to be seen by a doctor. Claire decided that too. Benson told her he was going to Church with Grandpa and Grandma and asked her if she wanted to go. Claire's exact response, "No. I go to hospital. I wanna see doctor." I'm not kidding. This girl is WISE beyond her years in sooooo many respects. She knew she wasn't doing well. She knew where she needed to go.

We took her to the emergency dept and told them that she hadn't urinated since 9:00 that morning. Her diaper was still dry and it was just after 1:00. They drew some labs and then had someone come in to scan her bladder to see how much urine was in there. Her tummy was tight and distended (big/puffy). She was soooooooo not comfortable. They put an in/out catheter in and drained almost 400 cc's of fluid from her little bladder! That is sooooo much! Why was she holding it in?? ((that question is still unanswered.)) She also hasn't pooped all day. Not sure why that is either. Getting that urine out of her relieved some of her discomfort but certainly not all. Something is still up.

She has only had a very low grade fever, not really even considered a fever as far as I know, but as the day progressed, Jared and I began to think that she may have an infection in her dialysis catheter. They drew blood cultures on that to see if she does, but we won't know much about those for about 24 hours. They have given her two different antibiotics to hopefully cover any possible infection.

But if it is an infection in her dialysis catheter (which is still in her only to draw blood work off from....so she doesn't have to get poked twice a week) why is Claire holding her urine in and not pooping???? She still isn't urinating normally as tonight....it just seems like something else is wrong too??.

Kidney function still looks good. Liver numbers are still elevated...quite a bit.

Oh princess.

She is such tough girl. Of course I know this, but I was amazed again tonight as I watched all she went through. Watching them put an peripheral IV in her little hand was a nightmare tonight. She is NOT an easy STICK....and it took them twice to get it.....but I was in SHOCK at how still Claire was while she screamed in pain and sweat in agony!!! They couldn't even get the tape to stick, she was sweating so bad. It was awful. I hate having IV's put in her. That one better work...for as long as they need it!!

Hoping for somewhat of a quiet night. She's somewhat comfortable and exhausted. If she doesn't start urinating more and getting it all out on her own, they will put a permanent catheter in to drain her urine out till they figure out what's going on.

Not quite the valentines/birthday I was expecting, but not sad about it for myself....but for having to watch my sweetest little one have to be in such pain and discomfort today. I hope it ends soon and we can get some solutions.