Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Sunday, February 21, 2010

Feb 21 8:30 pm

Claire had a pretty good day today. Her morning wasn't quite as good as the afternoon turned out to be, but a great day none the less! We love Sundays. It's so great to put many of the weekly worries out of our mind and enjoy the day together as a family!
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