Claire has had a rough time sleeping lately!! She was so tired this morning (and all day for that matter) because she's been waking up often through the night. And when she does wake up, she acts very unusual. She asks for random things...like her blanket turned the other way, her night light on (which is already on), both her blankets pulled up closer to her chin, or to turn her body the other way. It's really random because she's never done this before. She's always been a really good sleeper until these past few weeks. Since the transplant, she's had a harder time sleeping, but this past week has been worse than usual. I can't decide if it's just a 2-year old phase she's going through or if it is related to the medicines she takes. I know one of the medicines she's on, prednisolone, can cause sleep disruption and I'm really thinking that is contributing to the problem. She's just never been like this before and it almost doesn't even seem like she's acting like herself when she gets agitated and irrational at night time. BUT it's only at night time this happens. During the day she's still completely herself....very calm, understanding, patient, and rational. So it's just crazy to see the difference at night time. I really think it has to be at least somewhat (and maybe even mostly) a medicinal side effect.
hum.
I feel bad for her.
Other than that, things are going well. Labs from today look good and besides the fact that she was really tired today, she had a good day! She was still very playful when she finally "woke up" enough to enjoy the day and loved helping me wash the dishes and splash in the sink. She slept in the car on the way to the hospital both times today, which is a first for her. And the drive is only 7 minutes....so that shows how tired she's was. She's already off to a rough start tonight in bed. Hopefully it gets better?!?. For her sake.
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I've been on prednisone off and on for the past 15 years and it really does mess up my sleep, even when my doctors say I'm not on high enough of a dose to cause any problems. It also makes me kind of kooky - irritable, emotional, absentminded. Maybe it's just my excuse =) but it really could make her feel weird. Good luck!
Great to hear that she's doing well for the most part. It's rough on everyone when little ones aren't getting enough sleep, so I hope things improve soon. Glad to hear you are enjoying your ping pong table, Natalie. I remember playing with you when we were little. I got killed every time!!
hi again
my son has got the sleeping "problem" since he was a little boy - of course after the transplant. not only the prednisolone causes such problems but also several other meds . he is so used to it today that it is not such a big problem . earlier I had to give him more naps that I would have done with a "normal" child and later on when he joined kindergarden and school he always had a rest in front of the tv in the afternoon. they get used to it and they manage to deal with it by them selves:) hope she gets better soon and can enjoy the life she has got:)
hugs from asthrid in norway
crazy crazy crazy. medication can have some funky side effects. i hope she can get used to it better and get in a better sleep pattern. i have a naughty sleeper at my house and it makes us BOTH tired. :)
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