What a rough day for the princess. She just hasn't felt 100% well today. Well, I guess I can take that back....when Benson and Jared came around 11:30 she perked up, played with Benson in her room and was quite joyful. But other than that, it's been a rough one!
She hasn't had any other fevers today and it doesn't seem, from all the blood cultures they've taken, that she does have an infection. She sure seems to have a few of the symptoms of one, but so far, things are still negative. So what is it then?
They put a foli catheter in to collect her urine because this morning, she was holding her urine in and they didn't want her to be doing that because of possible harm it can cause to the kidney. She hated it. Now she can't walk around and it is very uncomfortable. But they want her urine to be completely drained until we can figure out what's going on. She also had a CT scan today. She really really hated that. Scary for a little one to be strapped to a bed and slid into a big round doughnut type thing and not know what's going to happen!! Worst part about it was she had to do it 3 different times! By the third time she was slightly more relaxed but it was still very traumatic for her. They're hoping the CT scan of her abdomen will help us get some more answers as to why she's holding her urine in...and just to double check that things are good with the kidney and liver. After she was finally done with the CT scan, all she could say was, "no more circle....NO MORE CIRCLE?!!!"
The bladder ultrasound they did earlier today looked good with no concerns of stones. Her liver numbers are slightly lower today than they were yesterday; still not normal, but down. They are still planning on doing the liver biopsy in the morning to confirm that things are well with the liver. And kidney function still looks good. Her blood level was done quite a bit today, mostly because of all the blood they've been taking from her these past 3 days, but hopefully it should get back up on it's own when they stop drawing so much blood.
It hasn't been an easy day for Claire and she's resting again now. Hopefully she'll have a better night than last night and the CT scan will help them figure out what's going on.
Another night in the hospital on it's way. Jared is taking his turn to spend the night with Claire and I get to hopefully get a good night's rest at home with Benson.
Pictures to come soon. I either haven't had my computer or the camera cables with me at the same time, so when I finally get those two together, I'll load em' up!
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5 comments:
Oh Natalie...we are praying for you guys! I know Claire is tough...but how much can one little cutie pie take? Your endurance is truly remarkable!!! I sure hope that everything gets figured out soon and that all will be well for your dear family!
I've been out of the digital world for a few days and didn't know what was going on. Oh sweet Claire, I am feeling sorry for you from so far away- lots of love and prayers coming your way!
Natalie- will you ever cease to amaze me? Probably not. Keep your chin up sweetie and get some rest.
Thank you for continuing to update. we're here listening and praying. <3.
OOOH! I hope all these tests & labs can figure out what in the world is going on!!! What a rough week you have had. I hope things start to improve right away!! You're all in my prayers!! xoxo
PS...I hope you were all able to get some rest, too!!
AHh! We are praying for cutie Claire they can figure out what is wrong. I loved the pictures of Benson and Claire playing. I can't believe how big they are getting. Hang in there!
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