Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.
Thursday, February 2, 2012
thursday
Nothing new today. Claire's liver labs were a bit elevated. We're going to meet with the liver doctor on Monday to see where to go from here.
I kind of feel like a slacker for not celebrating ground hog's day with the kids. Jared said if that was the worst of my doings today...then I'm doing just fine!
2 comments:
I didn't even say Happy Groundhogs Day once yesterday. Hope the Groundhog doesn't feel too jipped. (Not sure if jipped is a word...)
You are a fantastic mom. And really, the best holiday in February is your birthday!
You are the best mom for Benson, Claire, and Mabel. We are so glad that you are the mom. You are a great mom.
You are a great daughter too.
Keep doing what you are doing and things will turn out the way they should.
Ground hog day?
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