Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.
Monday, May 14, 2012
camping
We're off to the great outdoors for a little camping for a couple nights. Guess we can take that as a sign that all is well.
1 comment:
You deserve a great camp vacation.
Enjoy your wonderful family.
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