Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Friday, May 4, 2012

sisters

I love that these two are sisters!!

They had a makeup party on their couch for about an hour today. Priceless fun.




We're keeping Claire's bag connected to her bile tube till Monday. Just in case there's any issue with capping it of...it won't put her in the hospital over the weekend. Things are looking good for today.
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