Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Wednesday, April 17, 2013

smile

If these pictures don't crack a smile, I don't know what will!!



On Sunday we watched a performance from the Mormon Tabernacle Choir and Claire was completely enthralled by it!!  There was a guest singer featured at the performance and Claire studied this lady in every way.  Her eyes were glued to the screen...other than when she was belting it out herself and gracing us with her vocals!  She watches.  She learns.  And she DOES!!


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1 comment:

grandpa Terry and Diana said...

Yes I have a smile on my face after looking at the pictures.

You have quite a group of performers in your family.

We too watched the Irish performer with the Tabernacle Choir.

We can see why Claire was so taken with her performance.

April 18, 2013 at 2:43 PM

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