Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.
Friday, April 2, 2010
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3 comments:
It is so good to see her so happy and playing! YAY!
Hey! I think she won the "Blue Ribbon"! What a doll, I've about worn the computer out re-playing! The outside fun looks sooo invitable - I guess it's a toss up with the winter fun the "boys" had, but I vote for the summer fun - and especially to see dear little Claire out there enjoying it all! Keep up the good work!!
Love to all!! Grandma,GG
These pics are great!
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