Claire and I had a long day today. We were at the hospital from 9:30 -2:30. I'm exhausted!! We met with the allergy doctor today about desensitizing her to an antibiotic she needs called Bactrim. Turns out that it hasn't really been done in children before, only in adults. So lucky us, we get to be the guinea pigs, try it, and hope it works. Obviously not that lightly/simply...but you get what I mean. Many of the details are still being investigated into so I'm not exactly sure when/how it's going to happen, but I know that will give her a small dose of the drug the first day, and then she'll have to be medically monitored for a minimum of 1 hour after she gets the drug....and we'll gradually increase the drug each day for 10-11 days until she is at the full dose she needs to get. We're basically building up her body's tolerance for the drug and hoping it becomes desensitized to it. We're not even 100% sure if she is allergic to it, but they have to take these precautions because of the rash she got this past January. So we'll be getting more details later and go forward then.
We also did blood work and all her labs are still looking great. Liver numbers are still headed down and everything else looks fabulous. We met with Claire's kidney doctor and she has no worries about how Claire is doing. Other than the broken leg, blood clot, and desensitizing her to Bactrim, things look great! I'm really hoping things start to settle down after those top 3 things get resolved. But at least she has two great organs who are doing their job wonderfully...and there's no more dialysis. Yeah.
The rest of the week should be somewhat quiet! Let's cross our fingers that it stays that way.
3 comments:
That sounds like some good news. (for the most part!) I am sure that little Claire is making the best of that cast. My fingers are crossed for ya that it is a quiet week.
She is precious. I hope that her discomfort is going away. Is there some way of strengthening her bones in the future (or anything they can do) to prevent the breaks? I know that the bones were damaged from before the surgery, I guess what I am asking is, will the damage be repaired, or did the surgery just prevent further damage from being done? I am praying for Claire and your family.
So glad that her labs look good. Keeping Mom and Dad in my prayers as much as Claire. It's got to be hard dealing with all of this. Here's hoping you have a nice, normal summer!
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