Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Saturday, September 25, 2010

Blood Work

Seriously...ONE of a KIND kind of girl!!


5 comments:

Terry said...

What an amazing little girl. She is pretty smart and doesn't let a single thing escape her attention.

Philip, Melissa, & Summer said...

Wow. She is great at that. It is amazing how well they learn such intricate things at such young ages.

Tricia said...

Wow! If I ever need to stay at the hospital I'm going to ask Claire to come be my nurse. She is amazing!

Crystal Taylor said...

Wow, is right! She is going to be the first 3 year old nurse. What a sweetheart.

Beth said...

That dear Claire is one AWESOME, intellegent little gal. Watch out mecical school - she'll leave you in the dust! So sorry she has another infection - DARN! She certainly has a special mission - I think it is to prove to the world..."Yes! It can be done!!"
Love Ya'll, Grandma