Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Friday, September 24, 2010

more meds

Well I guess Claire's not totally in the clear. I got a call this afternoon from her nurse. She said Claire has yet another urinary infection. Pseudomonas. Darn. More antibiotics. Not sure if these past two urinary infections are related to the BK virus she has...or if it's just random...or if perhaps the antibiotic she's on for the BK virus is affecting something in the urinary tract. Who knows?.
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2 comments:

Terry said...

Wishing you the best.

September 24, 2010 at 8:15 PM
~adelle said...

Arrg. Always something isn't it? Love you all and love to read the updates. I am sure you are feeling round and ready to pop soon. Just a few more weeks to go! Happy Fall!

September 25, 2010 at 2:46 PM

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