Claire has been wanting her hair in a pony tail almost every day lately! She can't figure out why she can't see the actual pony tail when she looks in the mirror...but loves to put her hand back there and feel it.
Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.
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3 comments:
very cute. pony tails must be "in" right now i have been doing those at my house too! :)
Where in the world could one go to find two angels as preciouse as those? They set my heart throbbing!
Cute kids.
Looks like they had a fun time at the firestation.
Claire looks very pretty with her hair in a pony tail.
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