Today after we dropped Benson off at preschool, I suggested to Claire that we should take a nap. I was tired from a busy morning with Claire's joy school friends at our house and ready for a rest! Surprisingly she agreed. With one condition attached.
"Can I sleep with no tubes?"
Of course I agreed. She hasn't napped for over a year...so I was up for any bribery to get a little snooze myself!!
It kinda made me sad to hear her say that...and to see in her eyes how much she really MEANT it. The thoughts of sleeping and waking up with no tubes attached was wonderful to her!! She could hardly wait!! After we got home, she kept asking if it was time for nap yet. I still had to eat lunch and feed her...so eventually she simply said, "I can just put myself to bed. You can keep eating."
And so in her excitement of sleeping with no tubes she of course didn't sleep a wink...but enjoyed the freedom of knowing she was sleeping tubeless!!
One day. Probably not for many many more days (and probably even years.)
But one day she will be tubeless.
4 comments:
What a simple, inspiring request.
I wish I could have the tubes and that she could sleep with them.
I been checking on your children for awhile now. My son also had a transplant. I just had to comment tonight after reading your tubeless post, because my son doesn't talk yet, but I often wonder what he thinks of all "the stuff". He is as good as any nurse when it comes to where things go and how to take his vitals. I too dream of the day he will be tubeless! I also hope you got a little nap in!!
my son's site is www.cartermcates.com
Love, Chelle Cates
Oh! I can just see that little angel getting herself into bed! How thoughtful to know you needed to eat so she would just move on.
And it is so easy to understand why she didn't sleep. I could never count the times I have thought of a little nap (or a good nights sleep) but anxious thoughts have detered the actuality! She is just growing up too fast!
Lots of Love, Grandma
Why is it that such a simple request makes my heart hurt for her? What a sweet little girl. She has been such a good sport! Her whole life has been such a whirlwind of medical stuff, she is starting to realize that it isn't the only way to live. Can't wait for the day when she is completely tubeless!! What an angel.
Hope you got to sneak in a nap. The beauty of pregnancy #1 is that you get to sleep whenever you want! #3 gets a bit more tricky. Hang in there and continue to enjoy your corn candies. They are seasonal, so you have the freedom to eat how ever many you want! It is like the mini chocolate Canterbury eggs at easter....
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