Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Thursday, December 8, 2011

...

....and now we find out from the urine culture they did on Tuesday that Claire has a UTI (urinary tract infection). I'm just glad the antibiotics for that can be given orally, twice a day.

Tomorrow, more labs and dressing change on her pic line. So much for a "not much going on this week" kind of week! At least I got some yummy bread made today that makes just about anyone happy, warm, and fuzzy inside!
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