Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, December 17, 2011

so cute

This little girl is waaaaaaay tooooooo fun!! This week she went from..."oh I'll walk a few steps and then get down and crawl the rest of the way" toooooooooo walking EVERYWHERE, no matter how many times I fall down, I'll just get right back up and keep walking!! We just LOVE this little girl!

So cute.

So funny.

So Sweet!


Big day coming up for Claire tomorrow. Birthday #2 for that amazing kidney and liver of hers. What a remarkable time of year this is in so many ways!
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1 comment:

Eva said...

Hi Natalie,

Congratulations with Claire! Time flies when you don't have to do dialysis every day!

It's just too bad that her bile duct is giving her/you problems. Honestly I din't think it could be a problem two years post tx.

I hope the doctors are able to dilate it enough. And I sure hope that you don't run in to more problems!

Warmly

Eva

December 18, 2011 at 11:45 AM

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