Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Sunday, December 11, 2011

tomorrow

Tomorrow's the big day for Claire to try to dilate her bile duct again. Hoping, praying, and keeping our fingers crossed that it works!

One of Mabel's favorite positions...a sucker in the mouth with an extra one in her hand in case someone takes the other one away!

The kids were having fun with cameras tonight...and a few of them actually turned out decent!



...half way decent!
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1 comment:

Grandpa Terry and Diana said...

Cute pics. Thanks for sharing

December 13, 2011 at 6:14 AM

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