Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Sunday, January 15, 2012

Random picts from the week

Claire received a belated Christmas gift from Santa this week. His elves had to work extra hard on this specially designed couch. The fabric matches her favorite blanket! (I just couldn't resist!!) The kids have loved having their their own little spot to lounge!


Benson at his basketball practice. Next week's the "big" game!


We finally got some snow this week. Benson loved playing outside but loved even more throwing snow at his sisters inside!

Sleeping with the cold rice pack!


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2 comments:

Grandpa Terry and Diana said...

Cute pics. Thanks for sharing.

January 15, 2012 at 8:04 PM
Tasha said...

I love the couch!!!!! Where do you think Santa found it? Kid furniture is a serious weakness that I have!

January 17, 2012 at 2:27 PM

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