Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Tuesday, April 5, 2011

TV fun

For all you Minnesotans out there...Channel 6 is doing a story about our family tonight at 5:00 pm! Sorry for the short notice. They just called this morning, came this afternoon, and we'll be on tonight!

The story is also supposed to be posted on their website kaaltv.com around 7:00 tonight.

We are the COTA family for the month of April, which is "Donate Life" month. Channel 6 found us through COTA.

SMILE!
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4 comments:

~adelle said...

Very cool. I sneaked a peek this morning on the kaaltv website. :) You guys are famous! The kids all looked darling and you and Jared made some nice comments. I am glad someone was willing to donate their organs to Claire. She is a special girl for sure.

April 6, 2011 at 6:48 AM
Tasha said...

I just watched it! So touching. I think it turned out perfect.

Claire was darling at Preschool today!

April 6, 2011 at 11:48 AM
Doodlebug Gail said...

Just watched the clip - so nice to hear Clair talking. You're a beautiful family.

April 7, 2011 at 5:26 PM
The Lueders said...

Just watched the news clip...That is really neat that they brought to light really how important it is to be a donor. Your sweet family looked adorable and You looked absolutely beautiful!

April 8, 2011 at 4:10 PM

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