Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Friday, April 29, 2011

friday

Everyone is much better on the home front! Claire is 100% well (which I believe is nothing short of a HUGE blessing and miracle)...and Mabel is still a little sick, but much Much better. Yeah! I'm so glad this didn't linger longer like many of the other sicknesses we've had lately (like the cough I still have that won't go away!!)

Jared and I went golfing today! His mom is here visiting and watched the kiddos for us. We LOVED getting out and enjoying the beautiful day! So fun to be back on the greens! Not that I'm at all "good" at golf...not even in the slightest. But I can at least hit the ball, most of the time straight, and simply enjoy doing it! Jared loves it too. Good escape and great exercise!
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1 comment:

Grandpa Terry and Diana said...

Glad to hear that the kids are feeling better.

You deserve a break and we are glad you took it.

What was your golf score?????

April 29, 2011 at 9:06 PM

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