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Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.
3 comments:
Is it safe to assume that Claire stayed home from Church? :)
I love all of Mabel's bows!
We just love, love those kids too.
Thanks for sharing such beautiful pictures.
Oh, they are so darling!!!
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