Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Thursday, March 29, 2012

results

New is: GOOD! According to the biopsy, there is no more evidence of rejection in the liver. The doctor has concluded that the high liver numbers must be related to irritation from the bile tube that is still in the liver. So the prednisolone did do it's job!! Such good news!! We will now start to slowly taper her off the prednisolone and don't have to add any other anti-rejection med. Hooray for Claire!! Hooray for MIRACLES!
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3 comments:

Debbie said...

That is fabulous news!! I have been praying for just those words for Miss Claire! What an amazing girl she is! And by the way....an amazing mom and dad too!

Debbie from Kansas

March 29, 2012 at 7:46 PM
~adelle said...

Well Double Horray from me too! :)

March 29, 2012 at 8:04 PM
Grandpa Terry and Diana said...

Great to hear.

Keep up the good work.

April 1, 2012 at 6:30 PM

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