Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Friday, September 25, 2009

Day 11

Fridays are good days. We're happy to have another one. We had to run a half an hour longer today because they had the wrong/smaller tubing set up on her machine. To make up for the smaller tubes, we did 3 1/2 hours instead. Good thing I'm a good smiler! Hopefully next week things run a bit smoother. Glad it's the weekend!

Dr. Skinner


Claire cleaning her medicine port with an alcohol whip.

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1 comment:

shauna said...

Hey! I noticed the donation meter went way up. Is that from the event in Utah?

September 26, 2009 at 9:43 AM

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