Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Monday, September 21, 2009

Day 7

Life is good today. Nothing much new to report on. Sometimes it's okay to have an ordinary day. We'll take it!

Claire's blood level will be tested tomorrow.

"Oh, I love you so much," were Benson's exact words as this photo was snapped.

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