Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Tuesday, September 1, 2009

A Bittersweet Farewell



It is official! Claire and Benson’s sweet family has moved to Minnesota to be near the Mayo Clinic! We are all so very sad to see them go. We had a farewell party for them and it was great to see the tremendous support and friendships they have. They will definitely be missed out here in Colorado , but definitely not forgotten. Who could ever forget how cute Benson and Claire are? Benson’s smile just lights up a room! He is always so polite and says the funniest things. Everyone who helped watch him while Natalie was at the hospital with Claire said what a joy he was to have around. I’m sure as time goes by, he will continue to be an awesome older brother to little Claire. And what about that sweetie pie, Claire! She is always so happy despite all of her trials! Every time you look at her, you just cannot help but think that you are looking at an angel. She is probably one of the most well mannered almost two year olds that I have ever met! I know that she will continue to amaze everyone she meets with her knowledge beyond her years. Most of all, we want to wish their loving parents a smooth transition into their new home and life in Minnesota . Everyone who knows them and will get to know them will be deeply touched by their great faith in God and their incomparable strength against adversity. They have overcome every challenge they have faced in the past two years with a positive attitude and are such a wonderful example to everyone around them. What a true joy it has been to know their family! Dad, Mom, Benson, and Claire, may you always be truly blessed!! We will miss you!

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