Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, September 19, 2009

Day 5

Being Saturday I (Dad) took Claire to the hospital. Saturday is my dialysis shift, which I enjoy. It’s always fun to be able to spend some good quality time with Claire. Today things went well at dialysis. We took a blood test before we started to see if Claire would need to have the blood transfusion that the doctors and nursers expected. After 45 minutes we got the results and it was good news. Claires blood levels were sufficient enough to avoid the transfusion today, but more tests will be run on Monday to see if she still needs a transfusion. Hopefully she’ll recover from the major loss of blood yesterday. So we occupied our time with blowing bubbles (our favorite past time), reading books, watching the Letter Factory and having a tea party (she’s a great host). Claire is getting pretty good at blowing bubbles with her daily practice sessions.


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