Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Sunday, September 27, 2009

Day 13

Sundays are definitely a much-needed day of rest for our family. It is such a blessing to have the day off from dialysis and be home as a family, together, doing family things! We have enjoyed getting to know new friends here in Rochester through our church, The Church of Jesus Christ of Latter-day Saints, and have felt extremely welcomed by them!

Benson took part in the primary program today during Church and said his line up to the microphone just as perfect as can be: "Jesus taught, in Matthew 23, that he that is greatest among you shall be your servant." We've been practicing that line over and over these past few weeks. He was so proud to do it all by himself, without help from the teacher. Claire enjoyed watching him and the other children sing and speak today during sacrament meeting and kept telling us, "Brother, look Mommy (Daddy), Brother!" He was a 'superstar' in her eyes today (and ours)!

The kids found the funnels today in the kitchen and quickly realized talking in them, really loud, was really fun! They were later used as mitts to play catch with the bouncy balls. Who needs expensive toys?!!! Kids are so creative!

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