Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Tuesday, September 22, 2009

Day 8

Re-posted from cotaforbensonandclaires.com.

Claire's hemoglobin (blood level) was 10.0 today! This is an awesome jump from 9.1 that it was down to on Saturday after the big blood loss. So far they are not going to transfuse her but will keep watching it throughout the week. They would like it to be 11 or more but feel comfortable with where she is now. That's a blessing.

We got some things done today that help me feel more prepared for "the call." Claire received a special blessing from Jared and some friends from Church tonight. That puts all our spirits at ease a bit and brought a sweet spirit of peace to our hearts. I was amazed she sat on my lap throughout the entire thing, without moving a muscle! I guess I shouldn't be too surprised...she never ceases to amaze me. I also got some letters in the mail I've been meaning to write for a while now, and we got our cute family pictures hung above the piano!

We all get to go get our flu shots this week...and just a note to any family wanting to come visit...you have to get yours too!

Daddy play time!



2 comments:

Nathan & Michelle Watabe said...

Yea! I'm so glad that her levels are up! Speaking of raising levels, the fund-raising thermometer goes up daily! That is awesome. Keep donating, people! We've got plans in the works here for a couple more fundraisers!

Melissa said...

Hey, I want to see pictures of your pictures above the piano!