Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Wednesday, September 30, 2009

Day 16

Everything went really well today on dialysis. We were in-out-and home by noon! We have a new set-up with Benson's preschool too. He goes to preschool Mon. Wed. and Fri mornings. I still take both of them with me to the hospital at 8:00 a.m. to get Claire started and comfortable. Then I leave her there with the nurse and drive him to preschool, about 10 minutes away, then come back to Claire. But instead of me driving back and forth, I had a friend offer to save us some time and pick both of us up outside the hospital doors, drive us to preschool, and bring me back to the hospital. Benson isn't quite comfortable with her taking him alone, but it saves me so much time to simply have her pick both of us up, let me walk him into preschool, and then drop me back off.....instead of me having to go get the car in the underground parking and then sometimes wait 5-10 minutes when I get back to try to find a parking spot again! Another blessing!

A few of our favorite things



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