Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Tuesday, September 29, 2009

Day 15

Here are a few random facts I found out today about transplant stuff:

The region we are a part of, in which Claire could get the kidney and liver from, includes Minnesota, Illinois, North Dakota, South Dakota, and Wisconsin. As of 9/25/09, there are currently 6,820 people on the wait list in this region to receive a kidney transplant and 1,366 people on the wait list to receive a liver. Organs are first offered to patients within the area from which they were donated. From there they go to the region, if no match is found locally. Then nationally, if it get's that far.

Benson came to dialysis again and we had a great day painting


Watching Dora, Diego, and Boots


Then cuddled up for a nice long nap for the rest of the time!

Well at least two out of the three are true...but the third one was just too precious!
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1 comment:

Philip, Melissa, & Summer said...

They look cute all snuggled together.

September 29, 2009 at 8:44 PM

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