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Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.
Run / Walk Fundraiser in Ogden, Utah
Family Picnic ~ Fun Run ~ 5 K Brave Heart Challenge South Ogden City Nature Park
Monday September 21, 2009 4:30 - 8:00 p.m.All proceeds go to Benson and Claire's transplant fund.
Check out this link for details and registration.
http://adamsavenueparkway.ieasysite.com/aap_012.htm
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