Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Thursday, November 5, 2009

Day 52

Claire had an okay day today. I think it was just an off day for her. We all have those kind of days, right? She was tired and maybe just uncomfortable. I'm sure tomorrow will be better. Glad tomorrow is Friday. We'll get more news about the healing of her legs tomorrow at the orthopedic appointment.
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