This is weird. I have the house to myself!! Claire had to go back in for antibiotics this afternoon and Jared agreed to take her. Of course Benson wanted to go along, so it is all too quiet here!! Overall, Claire had a great day today. This should be the last week we have to go in for antibiotics. That will be nice. The blood cultures are officially negative so those antibiotics are working their wonders! Claire's ultrasound of her leg is at 11 tomorrow, meaning another early morning on dialysis to be done by 10:30. Hoping for a great report tomorrow! Better run and get something done while I still have the chance!
Last chance to bid on items at the online auction. Bidding will close tonight at midnight (MST). Thanks to everyone who has helped make this auction a huge success!!
Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.
Monday, November 16, 2009
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2 comments:
Hope you were able to get something fun done! Make sure you squeeze a bit of "you" time in every now and then! :) Hope things go well with the Ultrasound today!! Fingers crossed...
I'm glad the auction was a success! And I'm glad you got a well deserved house to yourself for a moment. How nice for you! Your kids look so sweet and so strong! I'm just amazed by your family's strength and faith and good spirits. Good luck with everything!
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