Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, November 28, 2009

Day 75

Nothing much new happened today. Claire got some more daddy-daughter time at dialysis and then Benson and I met them there at the end. Both kids had to get their second H1N1 vaccination after Claire was done. Not fun, but it's quick and done with now!

It's felt like such a long weekend because of Thanksgiving on Thursday and we are loving every minute of it!

One of my favorite pictures! She knows what she wants, how she wants it, and how many of them she wants!
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