The sweetest thing that happened today was that when Benson, Claire, and I finally got home from the hospital at 7:00, Jared was at the Church for the pinewood derby and I had to give Claire her shot. (Yes, we were supposed to give it at 4:00 p.m. when the pharmacy was supposed to have it ready. BUT we didn't end up getting it from them until 6:40. But that's not part of the "sweet thing of the day," so let's continue). Claire was not excited, as usual, and asked to hold mommy's hand as she always does. I gave her one hand while I scrubbed her leg with alcohol, but then needed both hands to do the duty. She quickly said "brother's hand. brother's hand." Benson so sweetly came and knelled right by her, gave her both his hands, and said over and over, "I'm sorry Claire. I know. It's okay. I'm sorry Claire." It was really sweet to watch as he comforted her and let her squeeze his hand through the pain.
And on a side note about the shots, there is indeed a reason we have to give her the shots at 4 a.m./p.m. They test the heparin levels in her body a few times each week to make sure they are not getting too high or too low. Those levels have to be checked exactly 4 hours after we give her the shot and it has to be checked before we start dialysis. Since we start dialysis every morning at 8:00, the shots have to be given at 4:00 so the levels are accurate.
And there's the sweet part of the day I'd like to remember! All the other frustrating stuff will pass. Tomorrow's another day! (hopefully a better 'another day!)
Claire looking at her memory book of the people she loves at The Children's Hospital in Denver, Colorado. She still knows and remembers each of your faces and names.
4 comments:
What a sweet boy!Sorry you had a rotten day. Your children are so special! Thanks for sharing a piece of your lives with us. I hope with all my heart tomorrow is better.
Much Love!
Adrianne
That is such a darling look of concentration on her face. You are in our prayers!!!
Thanks for answering my question. It makes me feel better to know there's a method to the madness and you're not getting up at 4 AM for no good reason.
Hopefully today is a much better day! Way to be positive and concentrate on the good. That story is about the sweetest thing I've ever heard!
I feel like those people out there need to get it together.
I am glad you are good at being positive. You are surely having to put a little sugar in your medicine each day. Keep on finding that element of fun...
I am ready for them to bring on the transplants! It is time. Here is to super wishes!!!!
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