Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Friday, September 16, 2011

finally friday

Well, we almost made it to the hospital every day this week, but Mabel's "weight-check" ended up getting rescheduled to Monday. 4 out of 5 days isn't bad though, right?! I hope we're done with Mayo Clinic visits for at bit, after Monday. BUT the good news is that all is well. Everyone is well and HOME....and that's what matters, no matter the number of visits.

Here's a few picts from our camping/boating trip last weekend.





Is that a happy girl or what??!?


SO fun!
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